Project overview

The health innovation community has one more approach towards increasing the timely and safe utilization of health data thanks to a research project co-sponsored by Health City and the Institute of Health Economics (IHE) in partnership with Alberta Innovates, Replica Analytics, and University of Alberta. Unique in Canada, this project was initiated to provide insight into the value and validity of synthetic (simulated) data in health services research. The promising results have been submitted for publication.

Health City and its partners identified synthetic data generation as one approach to leverage the region’s capacity and partnerships in data, artificial intelligence, and machine learning to fuel health system innovation. Synthetic data accurately simulates patient-derived datasets and, although generated from real world data, is not linked to the individuals from whom the data were derived. Because synthetic data contains no real patient health information, the datasets have the potential to be shared freely among investigators or those in industry without raising patient privacy concerns or contravening the Alberta Health Information Act. The project engaged the Office of the Information and Privacy Commissioner of Alberta to ensure synthetic data can be used in a way that respects the privacy of citizens.

The first phase of the project, which took place in October 2020, validated the first synthetic health dataset in Alberta. The success of Phase I informed the current phase, which aims to establish use cases for the synthetic datasets. Validating synthetic datasets and establishing use cases creates further opportunities for innovators to work alongside the health system while preserving patient privacy. Creating opportunities for innovators and researchers is a vital step in attracting investment to the province.

Health City and the Institute of Health Economics (IHE) are welcomed Merck Canada as a new partner to an innovative Alberta collaboration aimed at exploring the potential uses for synthetic health data. Merck Canada will be joining existing partners Alberta Innovates and the University of Alberta, and will support the acceleration of research in the field of synthetic data use with the ultimate goal of helping improve health outcomes for Canadians.

Data Op-Ed

Published in the Edmonton Journal, Health Cities CEO Reg Joseph wrote an op-ed which highlighted the knowledge and opportunity available in data. Click here to view the articles on Edmonton Journal’s website.

Publication

Published in BMC Medical Research Methodology, the Synthetic Data project team reported their assessment of generating synthetic administrative health data.

Click here to access the publication.

Globe and Mail feature

The Globe and Mail published an article on the power of synthetic data in addressing some of the biggest challenges we face today without setting off concerns about privacy and confidentiality. Health Cities’ Reg Joseph was interviewed to offer insights on the role of synthetic data in the innovation of healthcare. 

Click here to access the article.

White Paper

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